When:
🗓️ June 19
Where:
🌐 Everywhere
Since:
2006
Organized by the World Health Organization since 2006
Adopted by the United Nations since 2008
What is Sickle Cell Disease?
Sickle cell disease is a genetic blood disorder that affects the shape and function of red blood cells.
Normally, these red blood cells are round and flexible, but in individuals with sickle cell disease, they become rigid and take on a sickle-like shape.
This transformation can lead to a myriad of complications, including pain crises, anemia, organ damage, and increased susceptibility to infections.
Causes of Sickle Cell Disease
Sickle cell disease is caused by a genetic mutation that affects the production of hemoglobin, which is the protein responsible for carrying oxygen in our blood.
When the faulty gene is inherited from both parents, it results in the full-blown sickle cell disease.
However, when inherited from only one parent, it leads to a condition known as sickle cell trait, which often presents with milder symptoms.
Symptoms and Challenges
Symptoms of sickle cell disease can vary from person to person, but common ones include chronic pain, fatigue, shortness of breath, anemia, and increased vulnerability to infections. In children this causes delayed growth and development.
Pain crises, which occur when sickled red blood cells block blood flow, are among the most distinctive and agonizing aspects of the disease.
Imagine feeling like you just ran a marathon when all you did was walk to the mailbox.
Finding Relief: Treatments and Support
While a complete cure for sickle cell disease remains elusive, medical advancements have significantly improved the management of symptoms and quality of life for individuals with the condition.
Management involves a combination of medications to alleviate symptoms, blood transfusions to increase the number of healthy red blood cells, and, in some cases, bone marrow transplants to replace the faulty cells altogether.
Additionally, bone marrow transplants offer the potential for a cure, particularly for those with compatible donors.
The Creation and Purpose of World Sickle Cell Day
World Sickle Cell Day was established on June 19th, 2008, by the United Nations General Assembly to raise global awareness about sickle cell disease and its impact on individuals and communities. This annual event aims to promote advocacy, education, and support for those affected by the disease.
By uniting efforts worldwide, we strive to improve early diagnosis, access to treatment, and public understanding of sickle cell disease.
How to Support World Sickle Cell Day
There are numerous ways you can contribute to this vital cause.
Start by educating yourself and others about sickle cell disease, its challenges, and the experiences of those living with it.
Consider making a donation to organizations working towards research, treatment, and support for individuals and families affected by sickle cell disease.
Get involved in local events, fundraisers, or advocacy campaigns aimed at raising awareness and improving healthcare services.
Remember, every small act of kindness and awareness counts!
In Conclusion
On this World Sickle Cell Day, we stand in solidarity with those affected, fostering understanding, compassion, and support.
By spreading awareness and working together, we can strive for a future where sickle cell disease no longer casts its shadow, and every individual can live a life unhindered by its burdens.
Red blood cells work better when they are round.
#WorldSickleCellDay #SickleCellDay #WorldSickleCellAwarenessDay #SickleCellAwarenessDay
