Nystagmus Awareness Day

When:
🗓️ June 20

Since:
🥂 2013

Nystagmus Awareness Day reminds us to see beyond the movement and create a clearer vision for tomorrow. 👁️💫👀

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Created by the Nystagmus Network in 2013
Nystagmus Awareness Day used to be on the first Wednesday in November (Wobbly Wednesday) until it was moved to June 20 in 2017

Wobbly Eyes

Nystagmus, a condition characterized by involuntary eye movements, affects countless individuals around the globe.
It’s a condition in which the eyes move in uncontrolled, repetitive patterns, such as side to side, up and down or in a circular motion. These eye twirls may result in reduced vision and an impact on daily activities.

The causes of nystagmus can be quite diverse.
It can be present at birth (known as congenital nystagmus) or develop later in life due to underlying conditions such as neurological disorders, eye muscle imbalances, medication side effects, as a result of trauma or injury to the brain or inner ear.

Individuals with nystagmus may experience difficulty focusing, poor depth perception, sensitivity to light and difficulties with gaze stability. These challenges can impact daily activities such as reading, driving, and maintaining balance.
Nystagmus can also have considerable emotional and psychological consequences due to its impact on eyesight and self-perception.

Shaping a Clearer Vision

While nystagmus may not have a cure, there are strategies to manage its impact.
The options include wearing prism glasses to sharpen focus, having surgery to correct the eye muscles or just getting corrective lenses prescribed to lessen visual strain.
Rehabilitation techniques, such as vision therapy and occupational therapy, can also play a vital role in enhancing visual skills and adapting to the condition.
In some cases, underlying conditions contributing to nystagmus can be treated, offering potential relief or stabilization of the eye movements.

The Purpose of Nystagmus Awareness Day

Nystagmus Awareness Day was created by the Nystagmus Network, a UK-based charity, and has been observed annually on June 20th since 2013.
The goal is to improve awareness of nystagmus, encourage early diagnosis, foster a sense of community and support research activities. On this day, those who have the condition and the people who love them gather to talk about their experiences and support the cause.

Supporting Nystagmus Awareness Day

There are several ways you can lend your support to Nystagmus Awareness Day.
You can start by learning about nystagmus, its impact on individuals and the available resources for support.
Consider making a donation to organizations like the Nystagmus Network or other related charities that fund research, advocate for improved healthcare and offer assistance to those affected.
Participate in local events or fundraisers to help eliminate the stigma surrounding nystagmus.