Created by the APS Foundation in 2010 Also known as World Antiphospholipid Antibody Syndrome Day
World APS Day: Raising Awareness for Antiphospholipid Syndrome
Antiphospholipid syndrome, or APS, gets its name from the antibodies that attack “phospholipids”, which are important parts of cell membranes. In simple terms, Antiphospholipid Syndrome is an autoimmune disorder where the body mistakenly creates antibodies that attack phospholipids, substances necessary for normal blood clotting. This can lead to blood clots in veins or arteries, increasing the risk of strokes, heart attacks, deep vein thrombosis (DVT) and various pregnancy complications. Options for treatment usually include blood-thinning medications and close monitoring to lower the risk of clotting and manage related complications.
World APS Day, held on June 9, provides a much-needed spotlight to Antiphospholipid Syndrome.It aims to provide a platform for the APS community, their loved ones, healthcare professionals, and advocates to come together and make a difference.
Debunking Misconceptions
Misconceptions about APS can lead to misunderstanding and a lack of support for persons living with this condition. Let’s debunk some common misconceptions:
Myth: APS affects only older individuals. Reality: APS can occur at any age, including childhood.
Myth: APS is solely a women’s issue. Reality: Both men and women can be affected.
Myth: APS can be cured. Reality: While treatment can effectively manage APS, there is currently no known cure.
Myth:APS is just about blood clots. Reality: APS can also affect various organs, such as the heart, kidneys, and brain, leading to a range of symptoms and complications.
A Brief History of APS
The history of APS traces back to 1983 when E. Nigel Harris and Aziz Gharavi published their papers describing Antiphospholipid syndrome in full. The syndrome was at first referred to as “Hughes syndrome” after the rheumatologist Graham R.V. Hughes. Over time, research increased our knowledge of this complex condition, resulting in better diagnostic and treatment methods. Advances in medical science continue to change how we treat APS today, bringing hope and a brighter future for those affected.
Why We Need More Awareness
Antiphospholipid syndrome is invisible from the outside, quietly affecting numerous aspects of one’s health. Knowledge is empowerment. With increased awareness, individuals with APS can be diagnosed early, leading to timely treatment and a better management of their condition. BBy raising awareness, we can create a more considerate society that provides the resources and understanding needed for those experiencing the daily difficulties of APS. Raising awareness can boost research and advancements in treatment options, thereby improving the lives of those affected by APS.
The Origin of World APS Day:
World APS Day emerged from the hard workdedication of the APS Foundation of America, Inc. (APSFA). The APSFA, striving to increase awareness and support for APS, declared June 9 as World APS Day, aligning it with their 5-year anniversary in 2010. Motivated by the need to bring people together all around the world, the event developed rapidly through social media, online campaigns, and joint efforts with healthcare professionals and organizations, allowing more people to share their stories and raise awareness of APS.
Spreading Awareness Together:
World APS Day is traditionally celebrated by wearing burgundy ribbons, the color symbolizing APS awareness. Here’s how you can participate and show your support:
Share your story: Share your personal experiences with APS, raise awareness, and inspire others with your resilience.
Share your thoughts: Share informative posts, articles, or graphics to spread knowledge about APS and debunk misconceptions.
Share your support: Engage with support groups, online forums, or local APS organizations to foster connections and offer support. Amplify the message by using hashtags like #WorldAPSDay, #APSawareness, and #APSstrong when posting on social media.
In Conclusion
As World APS Day approaches, let’s come together to create a world where understanding, empathy, and support flourishes. By increasing awareness about antiphospholipid syndrome, we can make a better future for those affected by APS and their loved ones. Remember that your voice matters, and together, we can help to paint the world burgundy with kindness and solidarity.
